艾滋病病毒感染者生活质量与相关耻辱的关系

Relationship between quality of life and stigma among people living with HIV/AIDS

目的探讨艾滋病病毒感染者和病人的生活质量与耻辱的关系。方法对215名艾滋病病毒感染者和病人进行匿名问卷调查,采用WHO生活质量简表中文版和BergerHIV耻辱量表测定调查对象的生活质量和感受到的耻辱,对其生活质量和艾滋病相关耻辱感进行典则相关分析。结果艾滋病病毒感染者和病人生活质量各个维度的平均得分为50.74(生理领域)、46.01(心理领域)、53.78(社会关系领域)和43.94(环境领域);耻辱4个维度的得分为49.89(个人耻辱)、29.77(担心公开)、35.18(负面自我印象)和57.80(关注公众态度)。典则相关分析结果显示,自我负面印象和心理领域分别是耻辱和生活质量中起主要作用的因素,两者呈负相关,相关系数为0.4938(P<0.05)。结论艾滋病病毒感染者和病人的负面自我印象越小,生活质量心理方面越好。

Objective To explore the relationship between quality of life and stigma among persons with HIV infection or AIDS.Methods Anonymous,self-administrated surveys were completed by 215 people living with HIV/AIDS,by using WHOQOL-BREF (Chinese version) and Berger-HIV Stigma Scale to measure quality of life and perceived stigma.Canonical correlation analysis was used to analyze the relationship between quality of life and stigma.Results The average scores of four domains were 50.74 (physical),46.01 (psychological),53.78 (social relationships) and 43.94 (environment) for quality of life,and 49.89 (personalized stigma),29.77 (disclosure concerns),35.18 (negative self-image) and 57.80 (concern with public attitudes toward people with HIV) for Stigma,respectively.Canonical correlation analysis revealed that negative self-image and psychological domain were the main factor for perceived stigma and quality of life,respectively.There was a significant negative correlation between negative self-image and psychological level of quality of life (canonical correlation coefficient 0.4938,P<0.05).Conclusion The less the negative self-image,the higher psychological level of quality of life among people living with HIV/AIDS.