膀胱癌尿路造口患者病耻感的研究进展

Research progress on stigma in patients with bladder cancer undergoing urostomy

通过对国内外膀胱癌尿路造口相关文献的回顾分析,从尿路造口患者病耻感的来源、对疾病和健康的影响、相关因素、干预策略及措施、研究局限性5个方面进行综述,来源包括患者自身、干预治疗手段、社会;对疾病和健康的影响包括生活质量、社会心理、身体和健康行为、寻求健康帮助;相关因素包括人口社会学、疾病相关、家庭社会支持系统、疾病知识掌握情况和造口自我护理能力;干预策略及措施包括公众和个人两个方面。指出我国尿路造口研究的局限性,并提出建议和展望。以期为解决尿路造口病耻感带来的实际问题提供帮助,为制订和实施有效的临床干预措施提供依据。

Based on the review and analysis of the literatures on urostomy for bladder cancer at home and abroad,this paper reviews from five aspects:the source of stigma in urostomy patients,its impact on disease and health,related factors,intervention strategies and measures,and research limitations,including patients themselves,intervention methods,and society.The impact on disease and health includes quality of life,social psychology,physical and healthy behavior,and seeking health assistance.Related factors include demographic sociology,disease-related factors,family social support systems,mastery of disease knowledge,and self-care ability during colostomy.Intervention strategies and measures include both public and individual aspects.Point out the limitations of urostomy research in China,and propose suggestions and prospects.In order to provide assistance in solving the practical problems caused by the shame of urostomy,and to provide a basis for formulating and implementing effective clinical intervention measures.