帕金森病患者病耻感现状及影响因素研究

Stigma status and its influencing factors among people living with Parkinson’s Disease

目的:调查帕金森病患者病耻感现状并分析其影响因素。方法:采用便利抽样法选取181例帕金森病患者为研究对象,使用一般资料调查表、慢性病病耻感量表(SSCI)、改良H-Y分级量表、帕金森病患者心理社会适应量表(PAS)和统一帕金森病评分量表(MDS-UPDRS)对其进行问卷调查。结果:帕金森病患者病耻感总分为(55.41±11.33)分,内在病耻感为(33.23±7.40)分,外在病耻感为(22.18±4.99)分。多元逐步线性回归分析显示,婚姻状况、年龄、病程、运动分类、自我生活态度和社会支持是帕金森病患者病耻感的主要影响因素,可解释总体变异的47.8%。结论:帕金森病患者存在病耻感,医护人员应该重视帕金森病患者病耻感的影响因素,据此制定针对性的干预措施帮助患者正确面对帕金森病。

Objective:To investigate the stigma status and its influencing factors among people living with Parkinson’s Disease.Methods:Totally 181 patients with Parkinson’s Disease were included by convenience sampling in the current study,and questionnaires were used to collect patients information,including the general demographic form,the 24-item Stigma Scale for Chronic Illness(SSCI),Modified Hoehn&Yahr grading scale(H-Y),Psychosocial Adjustment Scale for Parkinson’s disease(PAS)and Movement Disorder Society Unified Parkinson’s Disease Rating Scale(MDS-UPDRS),to explore the levels and influencing factors of stigma.Results:The mean total score on stigma for patients with Parkinson’s Disease was 55.41±11.33.The multiple regression analysis result showed that patients’marital status,age,duration of disease,motor subtypes,self-attitude towards life and social support were potential influencing factors of stigma,which explained 47.8%of the total variance.Conclusion:There was stigma in patients with Parkinson’s Disease.Health care providers should pay more attention to the influencing factors of stigma in patients with Parkinson’s Disease and develop tailored intervention to reduce stigma.