不同人群对癌症信息交流的认知取向

The Views of Cancer Information Communication in Different Groups of People

目的:研究癌症患者、与其相关及其他群体对癌症信息交流的认知取向。方法:随机抽取501例癌症患者、169位亲属、86位医护人员、176位健康老人和505名一年级大学生,进行IPQCP+2、INQ测定,后两组分别以本人及以患者身份完成2套IPQCP+2和INQ。结果:各群体之间、患者与各群体之间在应否告知癌症患者其诊断、可能的生存时间和病人应否参与治疗方案制定、IPQCP总均分和各维度均分、总的信息内容和信息量选择倾向等均有显著性差异。结论:不同群体对癌症信息交流的认知取向明显不同,提示癌症临床医患交流的主要依据是患者本人的意见,癌症预防应根据不同群体的特点、参考患者的看法有针对性地进行。

Objective： To study and compare the views on cancer associated information and communication needs of cancer patients among cancer patients, their relatives, doctors and nurses, and other groups of people. Methods： A total of 501 cancer patients, 169 relatives,86 doctors and nurses, 176 healthy elderly people and 505 first grade college students were asked to complete the Information Preference Questionnaire of Cancer Patients and 2 questions regarding general information amount and content （IPQCP＋2）, and the Information Need Questionnaire （INQ）. The elderly and the students were asked to complete two sets of IPQCP＋2 and INQ in two roles： one as themselves and the other as patients. All data were analyzed in detail. Results： The views of different groups are significantly different. The differences include the viewpoints on whether to disclose the diagnosis of cancer and to inform the life expectancy to cancer patients, and whether the patients should participate in decisions about their medical care and treatments. The mean score of IPQCP on the overall items and the 4 dimensions of all groups, and their opinions on general information amount and content for patients are significantly different. Conclusion： The views of different groups of people on cancer associated information and communication needs of cancer patients are different. The views and requests of cancer patients themselves are the basis of doctor-patient communication. The prevention of cancer should be based on the characteIistics of different groups of people and the patients＇ views should be considered.