白血病患儿母亲心理历程的质性研究

Qualitative research on the psychological experience of mothers of children with leukemia

目的了解白血病患儿的母亲在陪伴子女诊断、治疗、康复过程中的真实心理感受,为临床护理人员对患儿家属进行心理支持提供借鉴。方法通过访谈形式,访问了16位白血病患儿的母亲,将获得的资料进行分析、整理,提出主题。结果患儿的母亲在子女患有恶性肿瘤过程中承受着巨大的心理压力和经济压力,表现过程为初诊时的震惊、困惑、拒绝,逐渐转变成无奈接受,对未来持悲观心理。支持系统主要来自母爱天性、丈夫和家人以及其他白血病患儿家长。结论白血病患儿母亲需要深切人文关怀和情感支持,护理人员应采取个性化的护理措施,帮助、指导患儿及其母亲提高生活质量,度过这一艰辛历程。

Objective To find out and understand the feeling of mothers who had children with leukemia in order to provide proper psychological support by medical professionals. Methods 16 mothers of children with leukemia were interviewed with open-ended questions. The data collected from the interviews were analyzed thematically. Results These mothers had significant distress reaction and financial burden. The shock of initial diagnosis, persistent distress during treatment, and the hopeless feeling for children＇s future were found in the study. The sources of social support included mother＇s unconditional love, husband, family and other parents in the same situation. Conclusions Mothers with leukemia children needed psychological intervention and emotional support. Health professionals should consider the personal differences among mothers and help them cope with their children＇s life-threaten illness and improve their quality of life.