复杂先天性心脏缺陷患儿术后生活质量评估

Assessment of Life Quality of Children with Complex Congenital Heart Defects after Surgical Treatment

目的评估复杂先天性心脏缺陷患儿手术治疗的生活质量。方法对10例经手术治疗的复杂心脏缺陷患儿体格发育[使用体质量、身高标准差记分法(SDS)]、易出现征象和求学入托情况进行综合评估。结果体质量SDS:9例患儿低于参照人群平均值,1例高于参照人群平均值;身高SDS:10例均低于参照人群平均值;临床表现有发绀2例,气促9例,心脏听诊均有杂音;8例已到上学入托年龄患儿在家待学。结论复杂先天性心脏缺陷患儿手术治疗后生活质量低下,其防治重点在于出生前干预。

Objective To assess the life quality of children with complex congenital heart defects after surgical treatment. Methods Ten children with complex heart defects after surgical treatment were given comprehensive assessment in physical development （ using weight and height standard deviation score, SDS） ; the symptoms and signs that easily occured ; startting time for enrolment to a kindergarten or primary school enrolment. Results The weight SDS of 9 cases were below average value of reference crowd, only 1 case was above average value of reference crowd;all the 10 cases of the height SDS were below average value of reference crowd;the symptoms prone to appear：2 cases had cyanosis,9 cases had breathlessness, and all 10 cases of heart auscultation had heart murmur ;8 cases stayed at home, having reached the school or kindergarten age. Conclusions The life quality of children with complex congenital heart defects after surgical treatment is inferior. The congenital heart disease prevention show focus on pre - birth intervention.