上海市脑瘫儿童家庭康复训练指导需求调查

A Survey on Requirement of Family Rehabilitation Training and Guidance for Cerebral Palsy Children in Shanghai

目的了解上海市脑瘫儿童家庭康复训练指导需求,为指导家长开展家庭康复训练提供依据和参考。方法通过预先设计的《脑瘫儿童家庭康复训练指导需求问卷调查表》,对本市300名脑瘫儿童实地调查,随后随机选择100名脑瘫儿童实施送康复上门服务。结果经送康复上门服务后,脑瘫儿童家庭康复需求量由41.5%提高至92.7%(P<0.01),对服务的需求时间和需求次数亦明显增加(P<0.01)。结论上海市脑瘫儿童家庭对康复训练指导了解不够,上门康复服务对脑瘫儿童的全面康复和回归社会可起重要作用。

Objective To investigate the requirment of family rehabilitation training and provide instructions and references to guide parents practising family rehabilitation training for cerebral palsy （CP） children in Shanghai. Methods 300 CP children were surveyed with the Requirement Questionnaire of Family Guidance Training Program of Rehabilitation for Cerebral Palsy Children. Then 100 children out of them were selected randomly and a visiting training and guidance of rehabilitation in family was afforded. Results After providing training and guidance of rehabilitation in family, the requirement of family rehabilitation increased from 41.5% to 92.7% （ P 〈0.01） and the duration and the times of training were also increased （ P 〈0.01）. Conclusion The families having CP children in Shanghai don＇t understand fully about the family rehabilitation. The visiting training and guidance program will be helpful for CP children having complete rehabilitation and coming back to society.