癌症患者及其家属对疾病的认知比较

A Comparison of Cognition between Cancer Patients and Their Relatives

目的:探讨癌症患者及其家属对疾病的认知差异,为认知干预提供参考。方法:收集患者和家属关注较多的19个问题编制成疾病认知问卷,调查60对首次入院治疗的癌症患者及其家属。结果:患者和家属对以下5个条目回答差异明显,①是否知道诊断(患者知道的占83%,家属知道的占97%,χ2=5.93,P=0.015);②是否应该告知患者诊断(87%患者和65%家属认为是,χ2=7.69,P=0.006);③患者本人是否必要知道治疗的详细方案(77%患者和62%家属认为有必要,χ2=8.71,P=0.013);④应该由谁来决定患者的治疗方式的选择(患者认为由自己决定的占7%,家属认为由患者决定的占17%,χ2=7.19,P=0.028);⑤假如治疗只能延缓病程,减轻痛苦,你会怎样选择(患者选择继续治疗的占80%,家属选择继续治疗的占97%,χ2=8.09,P=0.004)。受教育程度高(χ2=5.63,P=0.018)和有固定职业(χ2=4.10,P=0.043)的患者希望被告知详细治疗方案。结论:患者之间以及患者和家属之间在知情及治疗的认知上存在差异,在与他们的交流中,需要区别对待。

Objective： To compare the cognition of cancer patients and their relatives,so as to provide references for cognitive intervention.Methods： Cognition questionnaire consists 19 questions to which most patients and their relatives concern.Sixty new cases of cancer patients and their relatives were included in this study.Results： Answers to the 5 following questions from the patients and their relatives were different with statistical significance： do you know the diagnosis（83% patients know,97% relatives know,χ^2=5.93,P=0.015）;whether to inform patients of diagnosis or not（87% patients chose yes,65% relatives chose yes,χ^2=7.69,P=0.006）;is it necessary to tell patient intimate therapeutic regimen（77% patients thought it is necessary,62% relatives thought it is necessary,χ^2=8.71,P=0.013）;who decide the method（s） of treatment（7% patients and 17% relatives＇ answer is the patients,χ^2=7.19,P=0.028）;if the treatment is unable to cure your disease,what would be your option（80% patients and 97% relatives chose treatment,χ^2=8.09,P=0.004）.Different educational background（χ^2=5.63,P=0.018） and occupation（χ^2=4.10,P=0.043） affected their cognition on being informed of the intimate therapeutic regimen.Conclusion：Patients and relatives cognition of being informed of the diagnosis and therapy are diverse from each other.In communication with them,doctors must treat them respectively.