难治性癫儿童的生存质量状况及心理干预作用

Life Quality of Children with Intractable Epilepsy and Effect of Psychological Intervention on Them

目的调查难治性癫儿童的生存质量状况,观察心理干预对其生存质量的作用。方法应用儿童癫生存质量自评量表对难治性癫组(39例)、药物有效癫组(42例)及健康对照组(40例)儿童的生存质量进行评估。再将难治性癫组随机分成2组,即心理干预组和非心理干预组。非心理干预组20例,单纯予药物治疗;心理干预组19例,除药物治疗外,还予心理干预。对心理干预组患儿,在心理干预前和干预后1个月分别进行生存质量评估,非心理干预组患儿生存质量评估与心理干预组患儿同步进行,比较心理干预组干预前、后生存质量分值及心理干预组干预前后和非心理干预组生存质量总分。结果难治性癫组儿童的生存质量分值显著低于药物有效癫组及健康对照组儿童(Pa<0.01);心理干预组干预后的生存质量总分及人际/社会后果、目前担心和关切、个人癫隐私因子分显著高于干预前(P<0.01,0.05);心理干预后,心理干预组生存质量总分显著高于非心理干预组(P<0.01)。结论难治性癫儿童生存质量水平下降,心理干预可以改善难治性癫儿童的生存质量。

Objective To investigate the llfe quality of children with intractable epilepsy and observe the effect of psychological intervention on them. Methods Thirty-nine children with intractable epilepsy,42 children with drug respond epilepsy and 40 healthy children were employed and tested by using of the child self-report scale of quality of life for children with epilepsy. Scores of quality of life were compared among 3 groups. Children with intractable epilepsy were divided randomly into 2 groups： psychological intervention group （19 cases） and non psychological intervention group （20 cases）. Only drug treatment was given in non psychological intervention group, drug treatment and psychological intervention were given in psychological intervention group, quality of life was valuated before and 1 month after psychological intervention,then scores of quality of life were compared after and before psychological intervention in psychological intervention group, total scores of quality of life were compared between psychological intervention group after and before psychological intervention and non psychological intervention group. Results Compared with children with drug respond epilepsy and healthy children, the children with intractable epilepsy had lower scores of quality of life（ Pa〈0.01 ）. In psychological intervention group, total scores and some factor scores after psychological intervention were higher than those before psychological intervention（P〈0.01,0.05）. After psychological intervention,total scores in psychological intervention group were higher than that in non psychological intervention group （ P〈0.01 ）. Conclusions Children with intractable epilepsy have worse quality of life, the psychological intervention can improve their quality of life.