儿童少年住院精神分裂症家长生活质量的对照研究

A Comparative Study of Life Quality of Parents of Children or Juveniles with Schizophrenia

目的:探讨儿童少年住院精神分裂症患者家长的生活质量及其相关影响因素。方法:采用世界卫生组织生存质量测定量表(WHOQOL-100)以及自编相关情况调查表,对88名18岁以下住院精神分裂症患儿的家长和92名正常对照儿童少年家长进行了调查。结果:住院精神分裂症患儿父母WHOQOL-100量表的各领域得分均低于正常儿童少年父母(P<0.05)。患儿家长生活质量主要受其病耻感、对病情预期、家庭人均月收入、治疗花费承受力、家长年龄以及对未来担心程度等因素的影响。结论:儿童少年精神分裂症患者家长的生活质量全面下降,应给予足够的重视和关注。

Objective： To investigate the quality of life and its related factors of the parents of hospitalized children or juveniles with schizophrenia. Methods： Eighty-eight parents with schizophrenic children or juveniles and ninety-two parents with normal children were investigated with the Chinese version of the World Health Organization Quality of Life-100 （WHOQOL-100） and the related information questionnaire compiled by the study group. Results： The scores of WHOQOL-100 scale in every area were found significantly lower in the parents with schizophrenic children or juveniles than those in the normal group （P〈0.05）. The related factors of life quality of the parents with children or juveniles with schizophrenia included： their disgraceful feeling of the disease ,their expectation for the condition of the disease, the personal average income of the family, their endurance of treatment expenses, the age of the parents and their worry about the future of the schizophrenic children. Conclusion： The life quality of parents with schizophrenic children or juveniles is reduced in every area and needs more concern.