白血病患儿的生活质量及其相关因素研究

Quality of life of children with leukemia and the related factors

目的研究白血病患儿的生活质量及其相关因素。方法采用描述性相关性研究的方法，采用“少儿主观生活质量问卷”对80例自血病患儿进行访谈。结果患儿的生活质量仅为一般满意，抑郁、焦虑体验和躯体情感极不满意的情况较多。患儿的生活质量总分与性别有关，与居住地、是否独生子女、疾病种类、目前化疗阶段不相关，与家庭关系、学习成绩、同伴关系、性格等有关。结论应重视患儿生活质量的评价，采取积极措施提高其生活质量，尤其是男性，内向型，家庭关系、同伴关系欠佳，学习成绩不好的患儿。

Objective To investigate the quality of life of children with leukemia and the related factors. Methods The descriptive and interrelated design was used in this study. 80 children with leukemia were interviewed using ＂the QOL instrument for children＂. Results The level of QOL was ＂generally satisfied＂ among children with leukemia. Mostly, the level of QOL among depression, anxiety and physical perception was less satisfied. QOL was significant related with gender, relationship in the family, performance in the school, relationship with peer, and personality, and was not related with place of living, whether the child was the single child in the family, disease classification and stage of chemothrapy. Conclusions The evaluation of QOL of children with leukemia is very important. Interventions should be performed to improve QOL of children with leukemia, especially boy, and chidren who are introversive, or have worse relationship with family and peers, or worse performance in the school.