摘要
随着分子和基因数据对流行病学影响的增加,众多的遗传流行病学研究和后基因组学研究越来越依赖人类生物信息库的使用。生物信息库的范围也已从学术即教学研究或医院环境下的小数量收集到大规模的全国性储藏。在此背景下,生物信息库的建设存在许多待解决的伦理挑战,尤其是知情同意问题。通过分析参与生物信息库的几种同意模型,探讨了中国可选的模型——选择不参加进路。
As the impact of molecular and genomic data grows in epidemiology, numerous studies of genetic epidemiology and post -genomics research rely increasingly on the use of human biobanks. Biobanking ranges in scope from small collections of samples in academic or hospital settings to large - scale national repositories. In this context, the construction of biobank is confronting With numerows ethical challenges, informed consent in particular. The paper analyses several concent moder of participation in biobank and explores the optinal model of China opt - out.
出处
《中国医学伦理学》
2009年第2期31-33,共3页
Chinese Medical Ethics
