湖北省阳新县监测点慢性血吸虫病家庭负担和经济负担评价

Study on family and economic burden caused by chronic Schistosomiasis japonica

目的了解慢性血吸虫病家庭负担和经济负担。方法收集2006年湖北省阳新县监测点226例慢性血吸虫病确诊病例的有关资料，并对其中219例愿意配合的患者进行问卷调查。采用家庭负担量表（FBS）评价其家庭负担。直接经济负担由现场调查获得，间接经济负担采用健康寿命损失年（YLD）与人力资本法相结合估计。结果调查发现，FBS量表的家庭经济负担和家庭娱乐活动2个维度的阳性回答率较高，分别为54．8％和47．0％。其他4个维度的阳性回答率较低，均低于40．0％。219例慢性血吸虫病患者当年经济损失总计353480．59元，人均1614．07元；其中直接经济损失为61679元，人均281．64元；间接经济损失为291801．59元，占总负担的82．55％，人均1332．43元。结论慢性血吸虫病的家庭负担较重，其经济负担相对于当地居民的家庭年纯收入水平较重，尤以间接经济负担为主，应作为重点干预对象。

Objective To evaluate the family and economic burden of chronic Schistosomiasis japonica. Methods Relevant information on 226 chronic schistosomiasis patients from four surveillance sites in Yangxin county was collected. A questionnaire survey was conducted on 219 of them who agreed to corporate. Family burden was estimated with standard Family Burden Scale of Disease （FBS）. Direct economic burden was calculated by questionnaire survey. Human capital method combined with Years Lived with Disability （YLDs） was adopted to evaluate the indirect economic burden. Results The positive rates on the dimensions of family economic burden and family entertainment were 54.8 percent and 47.0 percent respectively. The remaining dimensions were lower than 40.0 percent. Results of the questionnaire survey among 219 chronic Schistosomiasis patients showed that the total economic burden was 353 480.59 Chinese Yuan, which was 1614.07 Yuan per person. The direct and indirect economic burden were 61 679 and 291 801.59 Yuan respectively. The average direct and indirect economic burden when counted on money losses, were 281.64 and 1332.43 Yuan per person, respectively. Conclusion The family burden caused by chronic Schistosomiasis japonica was serious, economically in particular. With regard to the income level of local residents, the economic burden of chronic Schistosomiasis was heavy to every household with indirect economic burden accounted for major proportion, suggesting close attention to be paid.