患者及家属对于癌症诊断告知对象意愿调查

The preferences of Chinese patients and their relatives regarding disclosure of cancer diagnosis

目的了解患者和家属对于癌症诊断告知对象的意愿。方法采用问卷调查法,调查在我院特需门诊就诊的患者175例,家属238例。调查问卷涉及患者和家属的一般资料和患者及家属对于癌症诊断告知的意愿。结果被调查175例患者中有74例(42.3%)希望一旦确诊患癌症即把诊断告知其本人,46例(26.3%)希望将诊断告知其家属,55例(31.4%)希望将诊断同时告知患者和家属。被调查的238例家属中只有5例(2.1%)希望将诊断告知患者本人,194例(81.5%)希望将诊断告知家属,39例(16.4%)希望将诊断同时告知患者和家属。结论我国的患者和家属对于癌症诊断告知对象存在着明显不同的意愿,患者的告知对象意愿受年龄因素影响比较明显。建议医生在告知癌症诊断时意识到这一现象,在告知过程中要尊重患者和家属的意愿,并采用必要的技巧和方式。

Objective To investigate the preferences of Chinese patients and their relatives regarding the cancer diagnosis disclosure. Methods A questionnaire investigating preferences of patients and their relatives towards cancer diagnosis disclosure was delivered to 250 patients and 250 families in VIP clinics in cancer hospital. Results 175 patients completed the questionnaire. Of them, 74 （42. 3% ） wanted to be informed once victimized by a cancer disease; 46（26. 3% ） would like their relatives to be informed;55 （31.4%） wished the truth to be told to both their relatives and themselves. 238 relatives of the patients completed the questionnaire and they wished the diagnosis to be disclosed to patients in 5 （2. 1% ）, to relatives in 194（81.5% ） and to both in 39（ 16.4% ）. Conclusion In China, patients and their relatives have different preferences regarding disclosure of cancer diagnosis, and the age of patients is the major influential factor on their preferences, while the preferences of their relatives did not show specific influential factors in the study.