13例西部农村艾滋病患者体验的现象学研究

A phenomenology study on AIDS patients as parents in the countryside of western China

目的探索在西部农村特定的环境下，身为父母的艾滋病患者在生活中的经历和体验。方法本研究采用质性研究中的现象学研究法。通过深入访谈法收集资料，对西部边远农村13位身为父母的艾滋病患者进行访谈。对访谈资料反复阅读、分析、反思、编码、分类和提炼，最终得出主题。结果经资料分析，最终提炼出6个主题：情绪变化复杂；坚持病情保密；社交隔离；经济现状恶化；子女为重；精神寄托单一。结论身为父母的艾滋病患者在心理、经济和社会方面承受着巨大压力，迫切需要加强对他们的心理支持，拓宽对他们进行资助的渠道，给予他们理解和尊重，改善他们的生活状况。

Objective This study aimed to explore the personal experiences and inward world of AIDS patients as parents in suburban areas of western China. Methods The phenomenologieal approach was used in this study. The data was collected by in-depth interview. 13 AIDS patients as parents who came from suburban areas of western China were interviewed. The interview data were read repeatedly, coded, classified, analyzed and extracted. Results Six major categories emerged from the data： complex emotional fluctuations; confidentiality of the illness; isolation from social life; worsening economic situation; top priority to their children; deficiency of spiritual resorts. Conclusions AIDS patients as parents suffer considerable stress from psychology, economy and social life. It is needed that strengthening psychological support to them, broadening financial accesses for them, understanding and respecting them to improve their living conditions.