新生儿疾病筛查工作中的伦理学思考

Ethical Thinking on Neonatal Screening

新生儿疾病筛查是出生缺陷的三级预防策略,对提高人口素质有非常重要的作用。其作为一项医疗活动,也存在着必要性、可行性、知情同意、隐私保护、消极与积极优生、严重病例处理等伦理问题。应在有利、尊重和公正等医学伦理原则上依法开展,并提高筛查质量,确保患儿的诊疗和随访,减少残疾儿童的发生,促进社会的和谐。

Neonatal screening is the third strategies to prevent birth defects, and it has a very important role to improve the quality of the population. As a medical event, there is necessity, feasibility, informed consent, privacy protection, negative and positive eugenics, treatment of severe cases, and other ethical issues. Neonatal screening should be beneficial, respect and justice on the principle of medical ethics. So we must be in accordance with the law in neonatal screening, and improve the quality to ensure that children with the diagnosis and treatment and follow--up. It can reduce the incidence of children with disabilities, and promote social harmony.