恶性淋巴瘤患儿家属心理历程的质性研究

Qualitative research of psychological experience of children malignant lymphoma patients＇ parents

目的了解恶性淋巴瘤患儿的家属在陪伴子女诊断、治疗、康复过程中的真实心理感受，为临床护理人员对患儿家属进行心理支持提供借鉴。方法通过访谈形式，访问了6位恶性淋巴瘤患儿的家属，将获得的资料进行分析，整理，提出主题。结果患儿的家属在子女患有恶性肿瘤过程中承受着巨大的心理压力和经济压力，表现过程为初诊时的震惊、困惑、拒绝，逐渐转变成无奈接受，对未来持悲观心理。支持系统主要来自家人以及其他恶性淋巴瘤患儿家属。结论恶性淋巴瘤患儿家属需要深切人文关怀和情感支持，护理人员应采取个性化的护理措施，帮助、指导患儿及其家属提高生活质量，度过这一艰辛历程。

Objective To understand the real psychological reception of children malignant lymphoma patients＇ parents during the diagnosis, treatment and rehabilitation process, to provide clinical nursing staff illus- tration of how to give psychological supports to patients＇ parents. Methods To interview 6 family members of childrent malignant lymphoma patients, organize and anylze the abtained data and propose the theme. The result shows the parents of children malignant lymphoma patients have experienced enormous psychological and eco- nomic stress, the behaving processes are the initial shock and confusion, refusion at the pre-diagnose period, and then reluctant acceptance, finally to have pressimistic attitude to the future. The supporting system is mainly from other family members and other parents of children malignant lymphoma patients. Conclusion Parents of chil- dren malignant lymphoma patients need deep humanistic care and emotional support; nursing staff should adopt personalized nursing method, help and guide the patients and their parents to improve living standards and finally go thrush the hardshio.