粘多糖病致气管狭窄的个体化治疗与护理附1例报告

A Case of Tracheal Stenosis Caused by Mucopolysaccharidoses:Individual Therapy and Nursing Care

目的:探讨粘多糖病致气管狭窄的个体化治疗与护理方式与方法。方法:通过1例粘多糖病致气管狭窄患者的复杂治疗与护理过程,总结护理此类患者的经验和方法,制定个体化临床护理措施。结果:该患者住院期间共进行了6次手术操作,包括多次更换气管插管和套管,置入支架。患者术后出现紫绀、呼吸困难等严重的低氧血症。经过严密的病情观察和个体化的治疗和护理,患者恢复良好,顺利出院。结论:对此例罕见疑难病例采取个体化的治疗与护理,不仅能有效缓解疾病,而且有助于医护人员和患者的沟通与配合及患者的康复。

Objective： To investigate individual ways and means of treatment and care for mucopolysaccharidosis induced tracheal stenosis. Methods：From the case of mucopolysaccharidosis induced by tracheal stenosis of individual therapy and the nursing process, summarize relieve tracheal stenosis experiences and lessons learned, development of clinical nursing. Results： The patient was hospitalized a total of 6 times interventions, including several times of replacing endotracheal intubation and cannuta, performing endotracheal stenting. Postoperation, dyspnea, eyanosis and severe hypoxemia developed. After a close observation, individual treatment and nursing care, the patient recovered well and discharged. Conclusions：For this rare and complicated case, using individual treatment and care can not only alleviate disease effectively, but also be helpful to communicate and collaborate between patients and medical staffs and patient＇s rehabilitation.