甘肃省2008年未修复唇腭裂患者检出率分析

Detection rate on un-repaired cleft lip/palate patients in Gansu province in 2008

目的 调查甘肃省未修复唇腭裂患者的数量及分布情况.方法 甘肃省卫生、人口计划生育系统的各级组织机构及工作人员在2008年1-12月利用人口普查网络系统筛查甘肃省境内所有未修复唇腭裂患者,采用统一问卷收集患者一般情况、家庭状况和唇腭裂分型等信息.结果 2008年甘肃省未修复唇腭裂患者共4675例,总检出率为1.84/万,男性（2.11/万）高于女性（1.43/万）;低年龄组（4.86万）高于中年龄组（0.97/万）和高年龄组（0.68/万）,其中,新生儿患者的检出率为13.5/万;农村（2.23/万）高于城市（0.62/万）;贫困县（2.19/万）高于非贫困县（1.35/万）.各地区相比,以白银市未修复唇腭裂的检出率（2.7/万）最高,金昌市（0.7/万）最低.结论 未修复唇腭裂对甘肃省造成一定的疾病负担,尤其对农村和贫困地区影响较大.

Objective To investigate the number and distribution of un-repaired cleft lip/ palate patients in Gansu province. Methods A census was conducted by staff members of the health system and Population and Family Planning Committee （PFPC） in Gansu province. Standardized -- Questionnaires were administered to collect demographic, domestic and diagnosis-related information. Results In 2008, the total number of nn-repaired cleft lip/palate patients was 4675, with a detection rate of 1.84/10 000 in Gansu province. Rates of detection were higher in males （2.11/10 000）, young age group（4.86/10 000）, rural areas（2.23/10 000） ,poor counties（2.19/10 000） than in females （1.43/10 000）, medium （0.97/10 000）/old age group （0.68/10 000）, township areas （0.62/10 000） , or richer counties （1.35/10 000）. Among all the cities and prefectures of Gansu, Baiyin city （2.7/10 000） had the highest while Jinchang city （0.7/10 000） had the lowest prevalence rates. Conclusion Un-repaired cleft lip/palate had been a disease burden to Gansu province, especially in the rural area and poorer counties.