脑瘫患儿父母心理反应及应对方式研究

The study on the psychology history of the parents of children with cerebral palsy

目的:了解脑瘫患儿父母在陪伴子女诊断、治疗、康复过程中的心理感受及情绪变化,为医务人员对患儿家属进行心理支持提供借鉴。方法:通过对100位脑瘫患儿的父母访谈资料的整理、分析,提出主题。结果:脑瘫患儿父母在子女患病诊疗过程中承受着巨大的经济压力并经历着严重的心理矛盾冲突,呈现出否认—惊恐—焦虑的情绪心理变化过程;父母的天性及其社会支持系统的支持是帮助其渡过该心理危机的关键。结论:脑瘫患儿父母需要深切人文关怀和情感支持,实施针对性的心理干预,有利缓解父母心理负担,进而减轻患儿父母心理悲伤。

Objective：To learn the pavements＇ experiences during the process of diagnosis,treatment,recongnication and provide guidance for the medical stuff with psychology support to help the family of children with cerebral palsy.Methods：100 couples parents were interviewed,the data collected were analysed,listed systematically,then proposed subject.Results：The parents whose children with cerebral pasly suffer large psychology conflict and economic pressure,when they go through the first state full of shocking,suffering and denying,they have to accept the truth unwillingly.And they felt pessimistical exceedingly for the future.The support system helping them pass through the psychology crisis relied on the inwardness of parents,their families and the others facing the same situations.Conclusion：The parents of children with cerebral palsy need deeply humanistic care and emotional support.And it is beneficial to implement psychological intervention targetly for the family with celebral pasly to help them pass the hardly period by easing the psychological burden of the parents and reducing the children＇s mental grief.