2～4岁先天性心脏病患儿生活质量影响因素分析

Study on influencing factors of quality of life of 2～4 years old children with congenital heart disease

目的 调查国内2～4岁先天性心脏病手术后患儿的生活质量现状,研究分析与生活质量相关的因素.方法 采用心脏疾病儿童生活质量量表（PedsQL Cardiac Module）及健康卫生服务满意度量表（PedsQL Healthcare Satisfaction Generic Module）对183例患儿采用邮寄形式进行随访调查.采用多元逐步回归统计方法分析先天性心脏病儿童生活质量的相关因素.结果 目前国内先天性心脏病患儿术后生活质量得分接近国外水平,家庭收入和健康卫生服务水平成为患儿术后生活质量主要相关因素（P＜0.05）.患儿年龄、手术时年龄、术后时间、手术次数、疾病种类及严重程度等变量与患儿生活质量无相关性.结论 加强患儿术后随访服务,可以进一步提高先天性心脏病患儿整体生活质量.

Objective To investigate the current status of quality of life of 2～4 years old children with congenital heart disease after receiving opeation and analyze influencing factom related their quality of life.Methods PedsQL Cardiac Module and PedsQL Healthcare Satisfaction Generic Module chinese editions were used toinvestigate 183 cases by mailing.Stepwise multilogistic regression were used to identy the potential factors.Results The levels of children＇s quality of life were almost samilar with the international onesl.Family income and health care satisfaction were related to quality of life（P〈0.05）.Age,surgery age,time after surgery,number of surgery,types and severe of disease were not related to their quality of life.Conclusions Strengthening patients follow-up service is helpful to improve quality of life of children with congenital heart disease.