中文网站中儿童注意缺陷多动障碍相关信息的质量评估

Information quality evaluation of Chinese websites on attention deficit hyperactivity disorder

目的：评估中文网站关于注意缺陷多动障碍的健康信息的质量。方法：用搜索引擎查找关于注意缺陷多动障碍的中文健康信息。用健康信息评估工具DISCERN评分评估信息质量。DISCERN包括15项评估，分值从1到5分，信息质量越好分值越高。参照我国《儿童注意缺陷多动障碍防治指南》对信息内容的完整性和准确性进行评估。结果：共获得55个网站，DISCERN评估显示没有1项评估的平均得分超过3分。内容评估发现49％的网站在1～5项主题中含有错误信息，最容易出现错误信息的主题是药物治疗和病因学。内容评估得分与DSCERN的可信度得分、详尽度得分、总分和总体评价得分均呈正相关性（r=0．66，0．77，0．78，0．72；均P〈0．001）。将所有网站根据内容得分进行评级，优秀为0，好15％，一般29％，差45％，很差11％。将网站按所有人属性分组进行评估，非营利性组织的网站信息质量最好，教育机构和医疗机构网站信息质量最差。结论：互联网上关于注意缺陷多动障碍的中文健康信息质量不佳。政府卫生部门、研究机构和公立医院等可信度高的机构应该重视网络健康信息对于患者的影响，提供优质的健康信息。

Objective： To evaluate Chinese websites providing information about attention deficit hyperactivity disorder （ADHD） . Methods： Search engines were used to look for information on ADHD. The web sites were evaluated for content quality with the validated DISCERN rating instrumenC A series of 15 questions were asked about the content, and the user rated each one on scale of 1 to 5 （higher being better）. Breadth of content and its accuracy were also scored based on standard texts such as Prevention and Treatment Guidelines of Childhood Attention Deficit Hyperactivity Disorder. Results： Totally 55 web sites were evaluated and no questions had a mean score of 3 or above in DISCERN rating. Forty-nine percent of the web sites provided one or more inaccurate pieces of information in content evaluation. Most inaccuracies were found in the topics of treatment and etiology. The correlation between the scores of DISCERN and content evaluation was statistically significant. Web sites were categorized by content evaluation as excellent （0） , good （ 15% ） , fair （29%） , poor （45% ）, and very poor （ 11% ） . Web sites of nonprofit organizations were of the best quality, while web sites of educational establishments and medical establishments were of the worst quality. Conclusion： Information on Chinese web sites about ADHD is of poor quality. Credible institutions, such as health agents, research institutions and public hospitals should recognize the effect of web based health information on patients, and take the responsibility of providing good information.