氟骨症患者生存质量指标的研究

A study on qulity of life of skeletal fluorosis patients

目的 探讨用一个综合指标—生存质量指数（ Ｉ Ｑ Ｌ）对氟中毒病人的健康状况进行定量评价的可行性。方法 从氟中毒病人疾病表现及心理适应状况，一般健康状况，日常生活能力及功能状态，社会支持状况 ４ 个方面的生活质量调查，计算 Ｉ Ｑ Ｌ 并对影响 Ｉ Ｑ Ｌ 的相关因素进行评价。结果 １５８ 名病人的 Ｉ Ｑ Ｌ 中位数为 ０８８。结论 氟中毒越重 Ｉ Ｑ Ｌ 越小，病人生存质量越差， Ｉ Ｑ Ｌ 与经济收入有关，经济收入越高， Ｉ Ｑ Ｌ 越大。

Objective To evaluate skeletal fluorosis patients' quality of life.Methods 158 skeletal fluorosis patients sampled from endemic fluorosis areas in Shandong Province were investigated.The questionnair adapted in this study included four aspects-fluorosis expression and the patients' psychological adaptation,and functional situation,general health status,daily living ability and functional situation,and social intercourse,which were weighted to calculate the indices of quality of life (IQL).The internal credit of this survey was 0.778 5.Results The results showed that the median of IQL of these 158 subjects was 0.88,while the medians of three sub-groups devided by the patients' condition were respectively 0.90,0.88 and 0.79,which proved that the more serious the state of the ill,the lower the value of IQL was.Additionally,this study discovered that the income level could affect the patients' quality of life.Conclusions Evaluating skeletal fluorosis patients' quality of life in endemic flurosis areas was feasible,and that developing economy of this areas would improve the patients' quality of life. [