先天性巨结肠根治术后排便功能及生活质量的研究

Study on postoperative fecal function and quality of life of patients with hirschsprung＇s disease

目的 评估先天性巨结肠患儿术后排便功能及生活质量,为探素康复干预措施奠定基础.方法 对113例符合要求的先天性巨结肠患儿进行回顾性调查,采用Heikkinen评分标准评价排便功能、小儿肛门直肠术后生活质量评分标准评价生活质量.结果 70.80%（80/113）患儿术后排便功能为优良,24.01%患儿表现不同程度的排便障碍;50例学龄后患儿生活质量评分显示,优者20例占40%,良者23例占46%,差者7例占14%;排便功能与生活质量之间存在显著相关关系.结论 先天性巨结肠患儿术后排便功能障碍和并发症对生活质量有显著影响,需要实施康复干预措施促进其生活质量的提高.

Objective To evaluate postoperative fecal function and quality of life of patients with hirschsprung＇s disease and to provide objective evidence for improving the quality of life after operations.Methods A follow-up research was made to 113 selected patients who were operated for Hirschsprung＇s disease. Their records were analyzed retrospectively and the qualities of life of patients were assessed according to the Heikkinen standard quantitative clinical scoring systems. Results 70. 80% of patients （80/113 ） have normal bowel habit after operations and 24.01% of them have abnormal bowel habit in different degree. Among 50 patients after school age, scoring of quality d life is good in 20 patients（40% ）, fair in 23（46%） and week in 7（ 14% ）. A positive correlation was found between fecal function and quality of life. Conclusions The abnormal fecal function and complications after operations influence the quality of life of patients with Hirschsprung＇s disease to large extent and some positive measures should be taken to improve their quality of life.