银屑病耻辱感及其影响因素研究

Experience of stigmatization and its influencing factors of psoriasis patient

目的从社会人口学特征、患病情况等方面研究影响银屑病患者病耻感的主要因素。方法采用随机抽样法,于2009年2～10月抽取长沙市和常德市共3所医院银屑病住院患者144名,对他们进行一般情况、患病情况、病耻感问卷调查和疾病PASI严重度评价。结果银屑病患者病耻感平均(89.44±16.08)分,多元线性回归分析结果显示,皮损出血、瘙痒、有被拒绝经历、皮损暴露等进入回归方程,R2=0.386。结论影响银屑病患者病耻感的因素有性别、年龄、受教育水平、工作状态、出血和瘙痒、皮损暴露、有被拒绝的经历。应该关注银屑病给患者造成的疾病耻辱感。

【Objective】 From the characteristics of social demography,illness and other aspects of psoriasis patients,explore the major factors affecting the stigma of patients.【Methods】 With random sampling,a total of 144 inpatients with psoriasis from 3 hospitals in Changsha and Changde were surveyed and assessed in disease severity from January to October in 2009.Survey information consists of general situation,prevalence,social support,medical response,psychological measurement and quality of life.【Results】 Stigma in psoriasis patients scores（89.44±16.08） points on average,and multiple linear regression analysis showed that lesions bleeding,itching,rejected experience,exposure and other skin lesions are compiled into the regression equation,r 2=0.386.【Conclution】 The factors affecting stigma of patients with psoriasis include age,education level,work status,bleeding and itching,the exposed skin lesions and the experience of being rejected.