上海地区艾滋病患者生存质量研究

Quality of life for patients with AIDS in Shanghai

目的研究中国文化背景下,在上海地区检测求治的艾滋病患者的生存质量现状。方法采用参与式观察和深入访谈相结合的方法,对118名在上海检测求治的艾滋病患者的生存质量现状进行研究。结果艾滋病患者的生存质量包括心理健康、生理健康、人际关系和社会环境四个方面,且这四个方面表现都比较差。结论为了提高艾滋病患者的生存质量,需要提高艾滋病相关知识的普及率、为艾滋病患者设立专业的心理咨询门诊、努力消除社会歧视态度、完善社会医疗保障制度。

Objective：to investigate quality of life （QOL） in patient seeking examination and treatment for AIDS in Shanghai, under the Chinese cultural background. Methods： Participant observation was used to study QOL of 118 patient seeking examination and treatment for AIDS in Shanghai, combined with In-depth interview. Results： The QOL of AIDS patients unfolds as four aspects, including mental health, physical health, relationship and social environment, all of which are below average for these patients. Conclusion： In order to improve the QOL of AIDS patients, we need to increase the penetration rate of AIDS-related knowledge, set up professional psychological counseling clinics for AIDS patients, strive to eliminate discrimination, and improve the social heahh insurance system.