摘要
目的：探索社区居家临终关怀的方法并进行居家临终关怀的效果评估.方法：采用方便取样,对60例居家临终的患者和家属随机分为对照组和干预组,每组30例.对照组按社区常规护理,干预组在社区常规护理的基础上给予结构化的居家临终关怀护理干预3个月.二组患者在干预前后分别调查日常生活活动量表（ADL）、生活满意度指数A （LSIA）、临终患者舒适度问卷,二组家属分别调查焦虑自评量表（SAS）、抑郁自评量表（SDS）等情况进行分析.结果：实施干预3个月后,干预组患者舒适度、LSIA,家属的SAS、SDS的各项指标明显优于对照组,有统计学差异（P＜0.05,P〈0.01）,实验组干预前后的各项指标比较也有统计学差异（P＜0.05）.结论：在社区实行基于家庭的临终关怀,可以提高居家临终患者的生活质量,有利于改善家属主要照顾者的心理状态,使居家临终患者家庭的生活质量得到改善.
Objective：to explore approaches of home--based palliative care and to evaluate the effect on terminal patient and their family member. Methods： 60 home--based terminal illed patients and their family member was selected and random assigned into intervention group and control group. Three months structured home--based palliative care was provided to intervention group by the community health care team while routine community care was given to control group. ADL, life satisfaction, level of comfort of patients and anxiety and depression of family member were measured before and after intervention. Results： The life satisfaction score and level of comfort were significantly improved after three month intervention. Level of anxiety and depression of family member were significantly decreased （p〈0.05）. Conclusion： home--based palliative care is a effective way in improving quality of life of terminal patients, and it can reduce negative psychological response of family member.
基金
上海市静安区卫生局人才培养工程项目基金编号 200706B066
关键词
居家临终关怀
生活质量
舒适度
心理状态
home--based palliative care
quality of life
comfort
psychological status
