苯丙酮尿症患儿家长心理卫生状况及其影响因素

Preliminary study on mental health in parents of children with phenylketonuria

目的探讨苯丙酮尿症(PKU)患儿家长的心理卫生状况及其影响因素,为其心理治疗提供理论依据。方法对山东省日照市经细菌生长抑制试验(Guthrie Test)筛查并确诊的26例苯丙酮尿症(PKU)患儿的家长(PKU组)进行心理调查,选择性别、年龄、文化程度与其无明显差异的26例健康儿童家长作为对照组。采用症状自评量表(SCL-90)、抑郁自我评定量表(SDS)及焦虑自我评定量表(SAS)评定两组家长的心理状况。结果 PKU组患儿家长心理上具有明显的焦虑、抑郁、恐惧、躯体化等多方面症状,抑郁和焦虑程度也均高于对照组,差异有统计学意义(P<0.05)。结论在PKU患儿长期治疗随访的同时,更应该加强心理行为指导,疏导家长的不良情绪、解除心理压力。

Objective To explore the mental health status and provide a theoretical basis for psychotherapy in the city of Rizhao.Methods To select the sex,age and educational level was no significant difference with the control groups of normal adults.We assessed that by Symptom checklis,90（SCL-90）,Self-Rating Depression Scale（SDS）and Self-Rrating Anxiety Scale（SAS） assessment.Results The parents of PKU children had apparent psychological anxiety,depression,fear,and many other symptoms of somatization.Depression and anxiety were also higher.Conclusion This study suggests that we should strengthen the psychological and behavioral guidance,counsel the parents′ negative emotions and relieve psychological pressure with the long-term treatment and following up.