新生儿疾病筛查网络平台在新生儿疾病筛查中的应用

Application of network information management platform of neonatal disease screening in Zhuhai

目的探讨基于网络构建新生儿疾病筛查信息化管理平台,实现在全市架构下统一实施新生儿疾病筛查技术服务和信息管理新模式及其作用。方法自主研发"新生儿疾病筛查信息管理系统",为本市所有分娩医院提供筛查技术服务和信息共享管理平台,并对应用该系统前后新生儿疾病筛查率、随访率、治疗率等方面进行对比分析。结果成功构建该信息化管理平台,实现从采血、传递、检查、报告、查询、跟踪随访的全过程信息化管理。实现了新生儿基础资料和检查文件自动导入,疾病筛查、确诊和治疗等信息共享。启用该系统后对所有新生儿筛查结果实现自助短信告知筛查结果,疑似病例自动短信召回,重点加强对阳性患儿长期的治疗和随访,使本市新生儿疾病筛查随访率、治疗率明显提高。对筛查相关机构进行质控和评价体系,保持筛查技术的先进性,取得该系统著作权证书号2010SR017295。结论启用该系统后,实现本市新生儿系列筛查全覆盖,最大范围减少失访。该信息平台可以让基层工作人员从繁重的手工登记统计工作中解脱出来,将更多的时间和精力投入到更好地为孕产妇和新生儿服务中去。该信息平台可以解决广大家长及时获得新筛结果的迫切需求,更好的为家长服务。该信息平台使本市儿童保健规范化、系统化、科学化,极大地提高了本市保健的整体管理水平。

Objective To study the construction of neonatal disease screening information management platform based on network for realizing the uniform implementation of the new mode of neonatal illnesses screening technological service and information management services under the whole city＇s framwork.Methods To independently research and develop the new ＂series of neonatal disease screening information management system＂ to provide the sharing management platform of screening services and information technology for all maternity hospitals in our city.The comparative analysis was performd in aspects of the screening rate,follow-up rate,treatment rate,etc.in neonatal diseases before and after the application of this system.Results The information management platform for neonatal screening was successfully constructed.The whole processes from blood collection,transfer,inspection,reporting,referral and followed-up realized the informationized management.The information sharing including automatic entry of newborn basic data and detection documents,diseases screening,diagnosis and intervention was realized.After start of this system,the results of newborn screening all realized to inform by self-help text messages,to recall suspected cases by automatic text messages and the focus on long-term treatment and follow-up in the positive children,which obviously increased the screening rate and follow-up rate in neonatal diseases screening.The relevant screening agencies were performed the quality control and evaluation for maintaining the advanced nature of screening technology.The system obtained the new copyright certificate No.2010SR017295.Conclusion After starting the system,the newborn screening series achieve whole city coverage,maximally reduce the follow-up lost.This information platform makes the grassroots workers free from heavy manual registration statistics work and take more time and energy into better maternal and neonatal services.The information platform can solve the urgent needs of most parents for timely acquiring the screening results and serve the parents better.This information platform realizes the standardization,systematization and scientization of children health care and greatly enhances the level of city＇s overall health management.