鄂西南某少数民族聚居区HIV感染者/AIDS病人干预前后生存质量比较

A Comparison of the Quality of Life of HIV/AIDS Patients between Pre-and post-intervention in Minority Areas of Southwestern Hubei Province

目的了解鄂西南某少数民族聚居区HIV感染者/AIDS病人干预前后的生存质量,评价干预措施的效果,为更好地开展该地区AIDS防制工作提供科学依据。方法采用《个人基本情况调查表》了解研究对象的一般情况及艾滋病相关知识的掌握情况,简体中文版MOS-HIV量表评价HIV感染者/AIDS病人的生存质量,SPSS16.0软件进行统计分析。结果艾滋病相关知识的总知晓率干预前为64.68%,干预后为88.99%。HIV感染者与AIDS病人比较,干预前差异无统计学意义,干预后差异有统计学意义。HIV感染者和AIDS病人自身干预前后比较差异均有统计学意义。干预前后HIV感染者除了情绪功能维度和健康痛苦维度,AIDS病人除了角色功能维度、疼痛维度、情绪功能维度、精力维度、认知功能维度和心理功能因子维度差异有统计学意义以外,其它维度均无统计学意义。结论以文化程度较低的农民和农民工为主的少数民族聚居区艾滋病患者及其感染者对于艾滋病相关知识和信息的了解很不够,干预前HIV感染者和AIDS病人对AIDS相关知识同等程度的缺乏,干预后有大幅提高,AIDS病人提高幅度更大。两类人群的生存质量不同,感染者和病人应有不同的干预策略和措施。

Objective To investigate the quality of life of HIV/AIDS patients between pre-and post-intervention in minority areas of southwestern Hubei Province,and to evaluate the effects of intervention measures so as to provide scientific grounds for HIV/AIDS prevention and treatment.Methods The questionnaires include HIV awareness rate questionnaire from the Monitoring and Evaluation Framework issued by the State Council AIDS Working Committee Office,personal basic information questionnaire,the simplified Chinese version of Medical Outcomes Study HIV Health Survey.All data were entered by EpiData3.1 and analyzed by SPSS16.0 for Windows.Results After intervention,the awareness rate of AIDS related knowledge increased from 64.68% to 88.99%,and there was significant difference between people infected with HIV and AIDS patients.Before intervention,the difference was not statistically significant between the two groups.And before and after intervention,there was significant difference between the two groups respectively.There was significant difference in the dimensions scores including emotional well-being,health distress for people infected with HIV,and for AIDS patients,there was significant difference in the dimensions scores including role functioning,pain,emotional functioning,energy/fatigue,cognitive functioning,health distress and mental heath factor,while other dimensions scores have no obvious difference.Conclusions Most of the farmers and migrant workers suffering from HIV/AIDS in the area have little schooling and the awareness rate of AIDS related knowledge of was inadequate.After intervention,the cognition degree was improved significantly,especially AIDS patients＇.The quality of life was different between the two groups.It was concluded that different strategies and measures should be taken for people infected with HIV and AIDS patients.