学龄期肾病综合征患儿及其主要照顾者的心境现状

Characteristics of Mood Status in School-Aged Children with Nephrotic Syndrome and Their Primary Caregivers

目的探讨学龄期肾病综合征(NS)患儿及其主要照顾者的心境现状,并分析影响学龄期NS患儿及其主要照顾者心境现状的相关因素。方法 NS患儿43例。采用问卷调查法,基本资料采用自设问卷,患儿采用国际公认的儿童抑郁障碍自评量表(DSRSC)、儿童焦虑性情绪障碍筛查量表(SCARED),主要照顾者采用成人焦虑自评量表(SAS),抑郁自评量表(SDS)。采用SPSS14.0软件进行统计分析。结果 1.学龄期NS患儿的心境问题发生率为32.6%(14/43例),其主要照顾者的发生率为44.2%(19/43例),患儿及其主要照顾者焦虑、抑郁分值、阳性发生率明显高于国内常模,且有显著统计学意义。2.学龄期NS患儿心境状况与年龄、性别、母亲文化程度、家庭经济状况、居住地、近0.5 a来复发次数、服药种类、照顾者焦虑抑郁状况无相关,患儿主要照顾者的心境状况与照顾者类型、患儿病情近0.5 a复发次数、居住地相关。结论对NS患儿及其主要照顾者的心境状况应给予临床关注,早期认识和及时治疗对于不同人群应采用个性化、有针对性的干预措施可提高患儿及家庭的生活质量。

Objective To investigate the prevalence and characteristics of mood status in children with nephrotic syndrome（NS） and their primary caregivers.The correlative factors of the mood status of school-aged children with NS and their primary caregivers were analyzed.Methods There were 43 cases with NS.General information from enrolled subjects was collected by using self-designed questionnaires used in this study.Screening for Child Anxiety Related Emotional Disorders（SCARED）,Depression Self-Rating Scale for Children（DSRSC）,Self-rating Anxiety Scale（SAS） and Self-rating Depression Scale（SDS） were performed on the subjects.Statistical analysis was performed by using SPSS 14.0 software.Results 1.The total positive rates were 32.6%（14/43 cases） and 44.2%（19/43 cases） in children with NS and their primary caregivers,respectively.The scores of anxiety and depression in children with NS and their primary caregivers were higher than those in the general population,and there was significant statistical difference between the primary caregivers and the general population.2.There was no correlation between sex,age,mothers＇ educational level,family finance status,family residence,di-sease relapses during the past 6 months,the primary caregivers＇ type,the primary caregivers＇ mood status and the mood status in children with NS.There was correlation among mood status of the primary caregivers,the primary caregivers＇ type,family residence,and disease relapses during the past 6 months.Conclusions Medical staff should pay attention to the mood status in children with NS and their primary caregivers.It should be recognized and treated as early as possible.The life quality of patients and their family might be improved through individual intervention.