唇腭裂患儿父母心身健康状况调查与思考

A study on the psychosomatic states of parents of children with cleft lip/palate

目的:了解唇腭裂患儿父母躯体及心理健康状况,为其进行心理治疗提供依据。方法:采用康奈尔医学指数(CMI)、家庭功能量表(FAD)及社会支持评定量表(SSRS)对102名唇腭裂患者的父亲或母亲及126名正常儿童的父亲或母亲进行调查,以了解唇腭裂患儿父母的躯体表现特征、心理健康状况及父母所面对的家庭、社会方面问题。结果:CMI中,病例组父母在躯体性疾病如眼和耳、心血管系统等方面以及在精神症状方面如不适应、抑郁等方面各因子分值均显著高于对照组(P<0.05);FAD及SSRS中,病例组父母各因子分值显著高于对照组(P<0.01)。结论:唇腭裂患儿的父母心身健康状况较差,所获得的家庭及社会支持较少,应给予足够的重视并积极开展心理干预。

Objective： To provide basis for the emotional support and psychological therapy for parents of the children with cleft lip/palate.Methods： Three self-administered questionnaires（CMI,FAD and SSRS） were applied in 102 parents（experimental group） of the children with cleft lip/palate and 126 parents（controls） with healthy children respectively.Results：Using the instrument of CMI,the answer scores of somatization such as eye and ear,cardiovascular system etc.and the answer scores of mental symptoms such as maladjustment,depression etc.in the experimental group were significantly higher than those in the control（P〈0.05）.Using the instruments of FAD and SSRS,the factor scores in the experimental group were significantly higher than those in the control（P〈0.01）.Conclusion： The psychosomatic states of parents of children with cleft lip/palate is poor,and they get little support from family and society.They should be given active reconstruction and intervening.