SF-36量表在江苏省晚期血吸虫病患者中的应用

Application of SF-36 scale among patients with advanced-schistosomiasis in Jiangsu province

目的使用SF-36量表评价江苏省晚期血吸虫病患者的生命质量，以评估该量表的信度和效度。方法使用自行改编设计的调查问卷（江苏省晚期血吸虫病患者生命质量调查表），采用整群抽样方法，抽取江苏省内登记在册的部分晚期血吸虫病患者，进行面对面访谈调查。结果量表的分半信度Spearman-Brown系数为0．92（P〈0．001）。内部一致性信度Cronbach’a系数为0．90，各维度的d系数为0.69-0.98。主成分分析法提取2个因子，累计贡献率达67．37％。SF-36量表评价不同地区、不同收入水平患者生命质量的差异有统计学意义，表明有一定判别效度。与杭州常模和四川常模比较，江苏省晚期血吸虫病患者生命质量各维度得分普遍低于常模。结论SF-36量表用于评价晚期血吸虫病患者的生命质量有较好的信度和一定的判别效度，但结构效度较差。江苏省晚期血吸虫病患者由于受长期患病影响，生命质量有待改善。

Objective To understand the reliability and validity on SF-36 scale and the quality of life （QoL） among patients with advanced-schistosomiasis in Jiangsu province. Methods Cluster sampling method was used to choose 586 advanced-schistosomiasis patients who were registered in Jiangsu province. Questionnaire including SF-36 module, was used for face to face interview on the patients. Statistical analyses were made to assess the results, including correlation analysis, reliability analysis, factor analysis, t-test and one-way ANOVA. Results The split-half reliability coefficient was 0.92, P〈0.001 and the internal consistency reliability was 0.90, with the range of Cronbach＇ α coefficient on each dimension was from 0.69 to 0.98. Through principal component analysis, two factors were identified, with the accumulative contribution rate as 67.37%. SF-36 showed certain discriminant validity to distinguish groups in different economic levels. Compared with the domestic norm data, the scores of SF-36 on those patients were generally lows. Conclusion SF-36 had good reliability and good criterion validity, with a certain degree of discriminant validity, but with poor constructs validity. Level of QoL of patients with advanced schistosomiasis in Jiangsu was low because of being chronically ill, that called for more strategies to improve the QoL of patients.