造血干细胞移植患者预处理期间真实体验的质性研究

Qualitative research on real experience of hematopoietic stem cell transplantation patients during pre-processing period

目的了解造血干细胞移植（HSCT）患者预处理期间内心的真实感受，为HSCT患者预处理期间心理护理和健康教育提供依据。方法采用质性研究的现象学研究方法，对7例预处理期间的造血干细胞移植患者进行深入访谈。结果造血干细胞移植患者预处理期间的真实感受包括悲观情绪，过度敏感、过度焦虑，健康知识的需求，经济负担重，承受疾病的压力，自身价值的体验。结论临床护理工作中应重视HSCT患者预处理期的真实体验和心理需求，深化整体服务内涵，加深对HSCT患者的理解和心理干预，从患者本身及家庭、社会支持网络的角度提供更深入、更全面的照护和情感支持，使患者能更好地应对预处理期。

Objective To explore and describe real experience of hematopoietic stem cell transplantation（HSCT） patients during pre-processing period, in order to provide basis for psychological nursing and health education. Methods Semi-structured in-depth interviews were conducted on 7 cases of HSCT patients by phenomenological research method in qualitative research. Results Real experience of HSCT patients during pre-processing period included： pessimism, over-sensitive, excessive anxiety, health information needs, economic burden, pressure of the disease and experience of self-value. Conclusions Clinical care should pay attention to the experience and psychological needs of HSCT patients during pre-processing period, deepen the content of holistie nursing, provide deeper and more comprehensive care and emotional support for the patients, so that patients can better cope with the pre-processing period.