系统性红斑狼疮患者服药相关知识和行为认知的调查

Investigation of medication knowledge and behavior of systemic lupus erythematosus patients

目的了解系统性红斑狼疮患者服药相关知识和行为认知的现况。方法采用自设问卷，对100例确诊为系统性红斑狼疮的患者进行服药相关知识和行为现况进行调查，分析影响知识和行为的因素。结果系统性红斑狼疮患者中21％服药相关知识得分优良，32％掌握较差，尤其是药物知识方面，全部答对者只占16％。37％的患者服药行为好，47％的患者有忘记服药的经历，而忘记或不按时服药是服药行为差的首要原因，占53．97％。文化程度在高中以下、非农民、继续工作或上学、非自费、病情趋向态度积极的患者在服药相关知识方面掌握较好（P〈0．05），收入水平5000元以下、疾病复发过、病程2年以上的患者在服药行为方面掌握较好（P〈0．05）。结论系统性红斑狼疮患者的药物知识方面相对欠缺，服药行为较差。提高患者服药行为的首要措施是使患者认识到服药行为差对自身的危害，关注病程较短的初次发病患者的健康教育。

Objective To understand the taking medicine knowledge and the status of behavior in systemic lupus erythematosus patients. Methods The self-designed questionnaire about medicine knowledge and behavior was used to survey 100 cases patients with diagnosed systemic lupus erythematosus in a three level of first-class hospital in Beijing city. Results Among 100 eases, 21% of the patients had outstanding score of medicine knowledge, 32% of the patients had a poor master of taking medicine knowledge, especially drug knowledge, all fight was only 16%. 37% of the patients had well taking medicine behavior, while 63% of the patients were bad. 47% of the patients had forget the experience of medicine with the leading cause of poor drug behavior （53.97%）. The patients with the degree of culture in high school, non farmers, continue to work or school, not at one＇ s own expense, and positive attitude, had a good drug related knowledge （ P 〈 0. 05 ）, as well as the level of income lower than ￥ 5 000, palindromia,the course of disease more than two years （ P 〈 0.05 ）. Conclusions Drug knowledge of Patients with systemic lupus erythematosus is relatively short, and taking medicine behavior is poor. First step of improving patients＇ medication behavior is to make patients know the harm, health educator need to pay more attention to the patients with shorter course of disease, especially to initial disease patients.