肛周Paget病患者自我感受负担影响因素及护理对策

The Factors Influencing Self-perceived Burden of Patients with Perianal Paget Disease,and Solution to Them

为进一步提高肛周Paget病（PPD）的护理质量，本研究对2例PPD患者进行访谈，采用Giorgi质性资料分析法分析患者自我感受负担（SPB）及其影响因素。结果显示，PPD患者存在沉重的SPB，其影响因素包括心理负担、家庭负担、社会负担和疾病负担。针对以上四个方面有针对性地进行护理干预，可减轻患者的心理、家庭、社会和疾病负担，从而有利于PPD的治疗和患者生活质量的提高。

In order to improve nursing quality on perianal Paget disease （PPD） patients this study took in- terview with 2 patients with this disease,and by using Giorgi material analysis method analyzed self-perceived burden（SPB） and influencing factors on SPB. As results, PPD patients were suffered from heavy SPB,the factors influencing it included pschological burden,familial one, social one and disease one. According to above 4 burdens items performing nursing intervention on the patients can relieve their burdens, so that enhance the qualities of treating PPD and life of patients.