信息系统管理模式对系统性红斑狼疮患者生活质量的影响

Influence of information system management mode on quality of life in systemic lupus erythemato-sus patients

目的探讨信息系统管理模式对门诊随诊治疗的系统性红斑狼疮（SLE）患者生活质量的影响。方法对自愿入组的经住院系统治疗后病情控制的需门诊随诊治疗40例SLE患者进行信息系统管理，在入组时与入组1年后采用简明健康状况调查问卷（MOS SF-36）生活质量量表进行评价和比较。结果进行信息系统管理1年后SF-36各维度评分显示患者生理职能、总体健康、社会功能、情感职能、心理健康得分较入组时有所提高，差异有统计学意义；生理功能、躯体疼痛、生命活力得分与入组时比较差异无统计学意义；结论信息系统管理模式能为SLE患者提供长期、系统、有效管理，提高心理健康水平，提高生活质量。

Objective To explore the effect of information system management mode intervention on quality of life in systemic lupus erythematosus （SLE） patients. Methods There were 40 SLE patients af-ter hospitalization and the patients＇ condition were under control. But they still needed outpatient treatment. In our study, when they joined the investigation group, the medical outcomes study 36-item short-form health survey （MOS SF-36） scale was used for measuring the quality of life. All patients would receive a baseline questionnaire evaluation before observation and endpoint evaluation after one year. The SF-36 scores of all the patients were investigated and analyzed. Results One year later, the SF-36 scores of the patients indicated that the scores of patients＇ physiological role functioning, general health, social role functioning, emotional role functioning, mental health improved with statistical significance. The scores of patients＇ physical functioning, physical pain, and vitality had no statistical significance compared with those one year before. Conclusions Information system management mode can provide long-term, sys-tematic and effective management for the SLE patients. It can improve the level of mental health and quality of life for SLE patients.