慢性乙肝患者自我感受负担的质性研究

Qualitative Study of Self-Perceived Burden in Patients with Chronic Hepatitis B

目的了解慢性乙肝患者自我感受负担的真实情况,为临床护理提供第一手资料。方法采用质性研究中的现象学研究方法,以半结构式访谈方法,选择22名患者作深度访谈,并采用Miles和Huberman内容分析法对资料进行分析和总结。结果通过资料分析,共提炼出经济负担、情感负担、自我实现缺失、健康生活方式缺乏及服药负担等5个主题。结论慢性乙肝患者自我感受负担明显,为了减少疾病复发,促进康复,医护人员应为患者提供个性化整体护理,并督促患者家属参与,减轻患者的自我感受负担。

Objective： To provide first-hand data for clinical nursing based on self-perceived burden of patients with chronic hepatitis B. Methods： In-depth semi-structured interview was conducted on 22 patients with the phenomenological approach. Data were summarized and analyzed by Miles ＆ Huberman content analysis method. Results： 5 themes were extracted from data analysis, including economic burden, emotional burden, lack of self-actualization, lack of healthy lifestyle and medication burden. Conclusion： Patients with chronic hepatitis B have significant self-perceived burden. Medical workers should provide personalized, holistic care and promote involvement of family members to relieve patients of self-perceived burden, reduce disease relapse and promote recovery.