家庭中心式护理对脑瘫患儿家长生存质量的影响

Effects of family-centered care on quality of life in the parents of children with cerebral palsy

目的：了解家庭中心式护理对脑瘫患儿家长生存质量的影响。方法选择脑瘫患儿家长104名，将2011年2-5月抽取的52名脑瘫患儿家长作为干预组，2010年10月-2011年1月抽取的52例脑瘫患儿家长作为对照组。对干预组家庭实施家庭中心式护理模式，对照组采用普通护理模式。干预前后用世界卫生组织生存质量测定量表简表（ WHOQOL-BREF ）和纽卡斯尔护理服务满意度量表（ NSNS）进行评估。结果干预前两组患者的 WHOQOL-BREF 各领域得分差异无统计学意义（ P ＞0．05）。干预后，干预组WHOQOL-BREF各领域得分为生理领域（62．64＆#177;13．63）分，心理领域（59．46＆#177;14．15）分，社会关系领域（63．41＆#177;13．40）分，环境领域（48．52＆#177;15．20）分，NSNS得分（57．15＆#177;6．38）分，均要高于对照组的（54．40＆#177;13．22），（47．12＆#177;16．16），（53．98＆#177;13．52），（42．43＆#177;13．35），（51．42＆#177;7．90）分，差异有统计学意义（Z分别为-3．139，-4．136，-3．792，-2．232，-4．725；P＜0．05）；干预组自身对照，干预后WHOQOL-BREF各领域得分均高于干预前，差异有统计学意义（ Z分别为-4．213，-4．068，-3．299，-4．160；P＜0．05）。结论家庭中心式护理模式可以提高脑瘫患儿住院康复治疗期间患儿家长的生存质量，并提高他们对护理服务的满意度。

Objective To explore the effects of family-centered care on quality of life in parents of children with cerebral palsy .Methods One hundred and four parents of children with cerebral palsy from February to May, 2011, were distributed into intervention group , and 52 parents of children with cerebral palsy from October to January , 2011 , were distributed into control group .The family-centered care was used among intervention group , while the control group was treated with traditional nursing care . The World Health Organization Quality of Life Scale Measure Abbreviated version （ WHOQOL-BREF ） and Newcastle Satisfaction with Nursing Scale （ NSNS ） were used to assess the two groups before and after the intervention . Results Before intervention, the scores of WHOQOL-BREF had no statistical differences . After the intervention, the scores of each domain of WHOQOL-BREF in intervention group were （62.64 ＆#177;13.63） in Physiological areas, （59.46 ＆#177;14.15） in psychological areas, （63.41 ＆#177;13.40） in social relations, （48.52 ＆#177; 15.20） in environmental field; and the score of NSNS was （57.15 ＆#177;6.38）.The scores of each domain of WHOQOL-BREF in control group were （ 54.40 ＆#177;13.22 ） in physiological areas , （ 47.12 ＆#177;16.16 ） in＆amp;nbsp;psychological areas, （53.98 ＆#177;13.52） in social relations, （42.43 ＆#177;13.35） in environmental field; and the score of NSNS was （ 51 .42 ＆#177;7 .90 ） .The scores of WHOQOL-BREF and NSNS were significantly higher in intervention group than that in control group （Z=-3.139, -4.136, -3.792, -2.232, -4.725; P＆lt;0.05）.The scores in each domain of WHOQOL-BREF in intervention group, after applying the family-centered care, were significantly higher than before （ Z =-4.213, -4.068, -3.299, -4.160; P ＆lt;0.05 ）. Conclusions The family-centered care can improve the quality of life and nursing satisfaction of parents of the children with cerebral palsy .