2013年浙江省温州地区麻风病受累者生存状况调查

Living status of leprosy affected people in Wenzhou,Zhejiang

目的了解浙江省温州市麻风病受累者的生存状况,为消除麻风病危害,降低麻风疾病负担提供参考依据。方法按照统一的技术标准和方法,由调查人员对温州地区内登记的麻风病受累者进行入户调查,调查内容包括人口学特征、家庭状况、劳动能力、麻风病致残状况、康复需求等生存状况,并填写调查表。结果 62例调查对象中,男性43人,女性19人,最小年龄23岁,最大91岁,平均63.7岁;18人处于独居;57人无劳动能力或仅有轻体力劳动能力;2级畸残率30.6%,畸残时长最短59个月,最长635个月,平均298.78个月,有15人缺少基本的防护措施。结论温州市麻风病受累者的生存状况较差,应为符合条件的麻风病患者提供基本生活和医疗救助,降低患者疾病负担,以消除因麻风病带来的危害。

Objective To understand the living status of people affected by leprosy in Wenzhou, Zhejiang province, and provide evidence to eliminate leprosy hazards and reduce the disease burden caused by leprosy. Methods Based on national criteria and standardized method, survey was conducted among leprosy affected people registered in Wenzhou to collect their demographic information, including family status, work ability, disability situation, rehabilitation needs. Results Among 62 people surveyed, 43 were males and 19 were females, who were aged from 23 years to 91 years （ average 63.7 years）. Eighteen people lived alone and 57 people lost work abilities or only could do light physical works. The rate of grade 2 disability was 30. 6%. The disability time ranged from 59 months to 635 months （ average 298.78 months ）. Fifteen people take no basic protective measures. Conclusion The living status of the leprosy affected people in Wenzhou is poor. It is necessary to provide basic medical aid and living assistance for them to reduce the disease burden caused by leprosy and eliminate leprosy hazards.