唇腭裂患儿照顾者的社会性别分析

Social Gender Analysis of the Caregivers for Children with Cleft Lip and Palate

唇腭裂患儿的出生会给家庭成员尤其是患儿的照顾者带来生理、心理和社会层面的压力。本研究基于社会性别的视角,对唇腭裂患儿照顾者进行分析比较,发现在唇腭裂患儿照顾的家庭角色分工、照顾者面对患儿时的心理反应、照顾者对待患儿的态度、照顾者应对生活压力时的心理素质、照顾者关注的问题和需求、照顾者寻求帮助的途径与力度等方面,都呈现出明显的男女性别差异。在上述研究发现的基础上,提出了构建唇腭裂儿童最佳照顾模式的政策建议。

Birth of children with cleft lip and palate can bring physical, psychological and social stresses to the family members, especially the caregivers of the children. Based on the perspective of'social gender', this research, by making comparison and analysis on caregivers of children with cleft lip and palate, has found obvious differences on social gender between men and women from the following aspects: the family role division of care giving to the children, the psychological reaction of the caregivers, the attitude of the caregivers, the psychological quality of the caregivers on coping with life pressure, the problems and needs the caregivers are concerned in, the way and the intensity of the caregivers on seeking help. On the basis of the findings above, we put forward the policy proposal of building the most suitable model of care giving to the cleft lip and palate children.