50例晚期肿瘤患者对病情告知需求分析

The Discussion on the Role that Truth-telling Plays in the Hospice Service

研究在晚期肿瘤患者及其家属中影响病情告知的相关因素,及病情告知对晚期肿瘤患者的影响和患者及其家属的需求,探讨病情告知在宁养服务中的作用。对50例晚期肿瘤患者及50例晚期肿瘤患者家属分别进行问卷调查,内容包括被问卷者的一般资料、情绪状态及需求。得知病情的患者多数对于生命是积极的、乐观的,少数处于消极状态中,而多数不知道病情的患者因对自身情况的猜疑导致情绪障碍,患者的需求因自身情况的差异而不同,年龄、教育程度及宗教等因素对患者病情告知的需求有不同程度的影响。病情告知在宁养服务中起重要作用,有利于患者生活质量的提高,但仍要根据个体特点并掌握一定技巧。

This article investigated the related factors that influence truth-telling among advanced cancer patients and their family members, the impact of cancer disclosure on the advanced cancer patients and the needs of patients and their relatives. A questionnaire survey which was inclusive of general information, emotional state and needs was conducted on 50 advanced cancer patients and 50 family members. Most of the patients who understand their illness condition were positive and optimistic for life, and a small number of them in passive states. However most of the patients who were blind to their diseases suffered from emotional disorder because of suspicion on their own condition. Besides, the needs of patients were distinct due to their own difference of situation. Furthermore, age, education background, and religion had impact on the patient＇s needs of being informed of their illness condition to different extent. Truth-telling played an important role in hospice service, and was beneficial to the improvement of patients＇ quality of life. But certain skills were still needed during the procedure and individual characteristics should also be considered.