急性白血病长期生存患者生命质量调查

A Study on the Quality of Life(QOL) in Long-term Survivors with Acute Leukemia

目的了解上海市急性白血病 (AL)长期生存病人的生命质量。方法上海市 1984.1.1～ 1994.12 .31期间2 9家医院 1379例上海市病人中选择生存时间≥ 5年的 95例长期生存患者为研究对象。用统一的 FACT- G量表了解长期生存病人的生命质量。结果和结论发现大多数病人基本达到正常的生命质量 ,其总的生命质量评分为 85分 ,年龄大于 6 0岁和文盲病人的生命质量评分比较高。近 5 0 %病人恢复正常的全日工作和学习 ,12 .6 %病人有化疗后继发疾病 ,已婚病人中近一半病人对性生活不满意 ,所以预防继发疾病和保护性功能应引起足够的重视。复发和治疗经费是长期生存病人最担心的问题 。

Objective To assess the quality of life(QOL) in long-te rm survivors with AL.Methods There were 95 long-term survivors with A L drawn from 29 hospitals in Shanghai during 1984 to 1994.Questionnaire FACT-G was completed in order to assess the QOL for long-term survivors with AL. Results and Conclusion Questionnaires were filled in by 95 long-term surv ivors with AL.The majority of survivors had normal QOL.The average QOL score was 85.Patients,being illiterate and aged over 60 years old,had higher QOL score.Ab out 50% patients returned to full-time job or school.12.6% patients had seconda ry diseases due to chemotherapy.In married patients,nearly half of the patients were not satisfied with sexual life.Therefore,the prevention of se- condary diseas es and the protection of sexual function must be taken seriously during chemothe rapy.The most worrying problems were relapse and treatment expenses.So,the estab lishment of medicine insurance system was very important for these patients.\;