北京市某三甲医院系统性红斑狼疮患儿遵医行为的调查

Medical compliance behavior among systemic lupus erythematosus children at a Class Ⅲ Grade A hospital in Beijing

目的调查系统性红斑狼疮(SLE)患儿遵医行为的现状,为实施有针对性的护理干预提供依据。方法采用方便抽样法,于2015年11月-2017年10月,选取北京协和医院儿科病房入住的124例SLE患儿为研究对象,采用自行设计的SLE患儿遵医行为调查问卷进行调查。共发放问卷124份,回收有效问卷116份。结果116例患儿遵医行为总分(105.91±10.62)分,其中“我不会擅自将药物减量”条目得分最高,为(4.91±0.43)分,属于用药及复查维度。结论系统性红斑狼疮患儿用药以及复查依从性较高,医护人员应继续与患儿家长一起在日常生活中落实日常防晒、选择适宜的饮食、注意预防感染的细节以及养成规律的运动习惯,以改善系统性红斑狼疮患儿远期预后,提升其生活质量。

Objective To explore the medical compliance behavior among systemic lupus erythematosus (SLE)children so as to provide a basis for implementing targeted nursing intervention. Methods From November 2015 to October 2017,we selected 124 SLE children of Department of Pediatrics of Peking Union Medical College Hospital as subjects in by convenience sampling.The self-designed SLE Children Medical Compliance Behavior Questionnaire was used to the investigation.A total of 124 questionnaires were sent out and 116valid questionnaires were collected.Results Among 116 children,the mean of total score of medical compliance behavior was (105.91±10.62)along with the highest score (4.91±0.43)in the term of "I will not presume to reduce the dose"belong to the dimension of medication and review.Conclusions SLE children have the high level of compliance in medication and review.Health care providers should continue to carry out sunscreen,choose appropriate diet,pay attention to the details of infection prevention and develop a regular exercise habit for children along with their patients so as to improve long-term prognosis and quality of life of SLE children.