乳腺癌病人信息接收及其影响因素现况调查

Questionnaire of information receiving status and influence of patients with breast cancer

目的:了解乳腺癌病人信息接收水平及其影响因素。方法:采用横断面研究设计,对474例乳腺癌病人运用生命质量信息接收评价量表(quality of life questionnaire-information 25,QLQ-INFO25)进行问卷调查和分析。结果:乳腺癌病人信息接收总分为(41.2±11.8)分(满分100分),4个维度得分从高到低依次为医疗检测信息(42.4±23.0)、治疗信息(39.5±17.5)、疾病信息(39.5±19.6)和其他服务信息(28.8±17.3)。单条目中希望接收更多信息(82.3±38.2)得分最高。不同年龄(P=0.03)、不同文化程度(P<0.001)、不同治疗阶段(P<0.001)和不同确诊后病程(P=0.02)病人会影响其信息接收水平。结论:乳腺癌病人信息接收水平总体较低,且信息形式单一。年龄、文化程度、治疗阶段和确诊后病程是影响其信息接收水平的主要因素。本研究提示应重视和完善专业渠道信息资源的提供和支持。

Objective To study the information receiving status of the patients with breast cancer and the influencing factors. Methods Four hundred seventy-four patients with breast cancer were studied with quality of life questionnaire- information 25 （QLQ-INFO25） by cross-sectional study. Results Full score was 100 and the total standardized score of QLQ-INFO25 in this study was （41.2±11.8）. Four dimensional standardized scores from highest to lowest were the informa- tion of medical detection （42.4±23.0）, the information of treatment （39.5±17.5）, the information of disease （39.5±19.6） and the information of other service （28.8±17.3）. The highest standardized score （82.3±38.2） was from the need for the patients who hoped to receive more information among 8 items. There were 4 factors to influence the information receiving by ages （P=0.03）, education （P〈0.001）, the stage of treatment （P〈O.O01） and the duration after diagnosis （P=O.02）. Conclusions The patients with breast cancer had lower information receiving and less kinds of information. The age of patients, education, stage of treatment and duration after diagnosis were the main influencing factors of the information receiving. It was shown that great attention should be paid on the need of information for the patients with breast cancer and specific information support.