先天性心脏病学龄前患儿主要照顾者负担及其影响因素分析

Burdens in primary caregivers of children with congenital heart disease and the influencing factors

目的了解先天性心脏病学龄前患儿主要照顾者负担情况,探讨其影响因素。方法采用一般情况问卷、Zarit照顾者负担量表（Zarit caregiver burden interview,ZBI）对82名先天性心脏病学龄前患儿主要照顾者进行调查,采用多元线性逐步回归分析对照顾者负担的影响因素进行分析。结果 82名主要照顾者ZBI得分41~78分,平均（56.93±8.13）分,患儿年龄及主要照顾者文化程度、每天照顾患儿时间均是影响患儿主要照顾者负担的主要因素（P〈0.05）。结论先天性心脏病患儿主要照顾者的照顾负担较重,护理人员应从生理、心理方面给予患儿照顾者充分的关心和爱护,从而降低其照顾负担。

Objective To investigate the burdens on primary caregivers of children with congenital heart disease burden and to investigate the influencing factors.Methods Eighty-two primary caregivers of children with congenital heart disease were involved in the study with a general data questionnaire and Zarit Caregiver Burden Interview（ZBI）. The influencing factors on the burden of caregiver were analyzed with linear stepwise regression.Results The burden score of 82 primary caregivers ranged from 41 to 78 points with an average of 56.93±8.13.The education level of primary caregivers,children age and time of day care were the main factors on the burdens on the primary caregivers（P〈0.05）.Conclusions The burden on the caregivers is very heavy.The nurses should give caregivers of children with congenital heart disease adequate care and love physiologically and psychologically so as to release their burdens.