癌痛患者口袋日记本的设计与临床应用

Design and application of cancer pain pocket diary

目的：为癌痛患者制作一种携带方便的癌痛管理日记本,提高肿瘤患者对癌痛知识的掌握,促进患者主动参与癌痛规范化治疗。方法选取四川省肿瘤医院6个癌痛示范病房的299例中重度癌痛患者,将病房分别编号,随机分为研究组156例和对照组143例。对照组采用常规癌痛健康教育指导,研究组在此基础上给每个患者分发一本癌痛患者口袋日记本,动态记录疼痛控制情况及不良反应。采用自制肿瘤患者癌痛知识自评问卷和肿瘤患者癌痛控制满意度问卷于患者出院前进行测试和评价。结果研究组患者癌痛评估与药物使用得分与对照组比较差异无统计学意义（P〉0.05）,研究组不良反应预防得分（15.84±1.70）分,不良反应观察（15.84±1.70）分,癌痛误区鉴别（18.52±1.16）分,均高于对照组,差异有统计学意义（t 值分别为5.25,2.38,13.53；P 〈0.05）。研究组非常满意98例,满意55例,不满意3例,满意度高于对照组,差异有统计学意义（Z=8.87,P〈0.05）。结论癌痛患者口袋日记本制作简单、携带方便、实用性强,有利于提高肿瘤患者对癌痛知识的掌握水平,促进患者参与癌痛规范化治疗,提高癌痛控制自我管理能力和满意度。

Objective To design a pocket diary for cancer pain patients, to explore the effect on＆amp;nbsp;improving their knowledge about pain control, and make them actively participate in cancer pain control activities. Methods The study was performed in Sichuan Cancer Hospital, it was conducted on 299 cancer patients, who were randomly divided into the experimental group （ 156 cases ） and the control group （143 cases）, undergoing moderate-to-severe cancer pain in six standardized pain control demonstration wards. Patients from the experimental group recorded their adverse reactions and general routine care, with a cancer pain pocket diary, and the patients in the control group only got the general routine care. A questionnaire was used to test their level of cancer pain knowledge and degree of satisfaction before discharge. Results There was no significant difference in the pain assessment and drug use between the two groups （P〉0. 05）. The scores of adverse reactions prevention, adverse reactions report and misunderstanding identification of the experimental group were （15. 84 ± 1. 70）, （15. 84 ± 1. 70） and （18. 52 ± 1. 16）, respectively, which were significantly higher than those in the control group （t =5. 25, 2. 38, 13. 53, respectively;P〈0. 05）. In the experimental group, 98 patients were quite satisfied, 55 patients were satisfied, 3 patients were not satisfied. There was a significant difference between the two groups （Z =8. 87,P 〈0. 05）. Conclusions The cancer pain pocket diary could improve the cancer patients′ knowledge about pain control, and make them actively participate in cancer pain control activities.