胃癌患者家庭照顾者照顾负荷、应对方式及照顾知识需求调查

Investigation of caregiver burden, coping style and knowledge demands in gastric cancer patients' family caregivers

目的调查胃癌患者家庭照顾者照顾负荷、应对方式及照顾知识需求。方法对胃癌术后患者家属310名采用照顾负荷问卷、应对方式问卷、知识需求问卷进行调查。统计照顾者负荷总分、身体负荷分数、心理负荷分数,疾病分期、健康状况等指标。照顾者负荷应对方式与知识需求之间的相关性采用Pearson相关分析,多因素的比较采用Logistic回归分析。结果照顾者负荷得分总分为(40.1±11.6)分,其中心理负荷平均分[(2.6±0.5)分]最高。照顾者消极应对得分[(3.4±0.7)分]相对较高。照顾者与患者的关系、健康状况、患者疾病分期等是影响照顾负荷的主要因素(P<0.05或P<0.01)。照顾者对饮食和营养相关知识的需求[(3.6±1.0)分]最迫切,其次为疾病相关知识[(3.5±0.8)分]、康复锻炼相关知识[(3.3±0.8)分]、药物方面知识[(3.1±0.9)分]、心理和社会健康知识[(2.9±1.0)分]。照顾者对照顾知识的需求情况与负荷各个维度呈正相关(P<0.01)。结论胃癌患者家庭照顾者照顾负荷较重,其中心理负荷最重,更倾向于消极应对方式,对饮食及营养相关知识的需求最迫切。

Objective To investigate the caregiver burden, coping style and knowledge demand of gastric cancer patients＇ family caregivers. Methods 310 gastric cancer patients＇ family caregivers were selected and surveyed by caregiver burden questionnalre, coping style questionnalre and knowledge demand questionnalre. The total score of caregiver burden, body burden score, psychological burden score, staging of disease, physical condition were analyzed. The correlation analysis among caregiver burden, coping style and knowledge demand was used Pearson correlation analysis. Logistic regression analysis was used for multiple factors comparison. Results The total score of caregiver burden was （40.1±11.6） scores, among which psychological burden score [（2.6±0.5） scores] was the highest. Score of negative coping style was higher [（3.4±0.7） scores]. Relationship between caregivers and patients, patients＇ health conditions, disease stage were the maln influencing factors of caregiver burden （P〈 0.05 or P〈 0.01）. Caregivers were in direly need of diet and nutrition knowledge [（3.6±1.0） scores], followed by the knowledge of disease [（3.5±0.8） scores], rehabilitation [（3.3±0.8） scores], medicine [（3.1±0.9） scores], psychological and social health [（2.9±1.0） scores]. Caregivers＇ knowledge demand was positively correlated with caregiver burden （P〈0.01）. Conclusion Burden of gastric cancer patients＇ family caregivers is heavy. Psychological burden is the heaviest and shows negative coping style. Demand for diet and nutrition knowledge is the most urgent.