论人文关怀在白血病患儿长期治疗中的作用

Effect of Humanistic Care on Long-term Treatment of Leukemia Children

目的通过了解白血病患儿及其家长在治疗及康复过程中的心理变化,为临床医护人员对患儿和家长实行人文关怀措施提供借鉴。方法通过访谈形式,先后访问了20例白血病患儿及其父母,将获得的资料分析整理,提出问题,并进行一对一的个体化干预。结果白血病患儿治疗时间长,化疗药物副作用大,带给家长和患儿的痛苦也较大,容易引起患儿和家长的负面情绪,不同程度的存在心理问题,进行适时的心理干预和人文关怀对其疾病的康复有积极作用。结论针对白血病患儿不同治疗时期的心理特点,患儿家长的心理需求,提出对白血病患儿及家长的人文关怀主要包括:优先稳定家长情绪;个性化满足不同年龄段患儿的心理诉求;提高医疗技术,开展无痛治疗;加强医患之间的信息沟通,提供必要的社会支持,共同提升患儿的生命质量。

Objective：To investigate the psychological changes of leukemia children and their parents during treatment and rehabilitation,and provide the basis for medical staff giving humanistic care to them.Methods：20 leukemia children and their parents were interviewed and accepted one to one individualized intervention after ana-lyzing the information and posing problems.Results：Leukemia children need long-term treatment, and chemo-therapeutic drugs has obvious side effect, which make parents and children painful and easily cause negative emo-tion and psychological problems.Timely psychological intervention and humanistic care are good for disease recov-ery.Conclusion：According to children′s psychological characteristics in different treatment stages and parents′psy-chological needs conclusion was made that humanistic care on leukemia children should include：to make the pa-tient comfortable first, meet the psychological demands of children in different ages, improve medical technology, carry out painless therapy, enhance communication skills between doctors and patients, give the necessary social support, and improve the children′s quality of life.