肠造口并发症患者自我管理体验的质性研究

Qualitative research on self-management experience for intestinal fistulization patients with complications

目的探究肠造口患者发生造口并发症后自我管理的体验,为临床护理人员采取有效措施提高患者生命质量提供依据。方法对9例发生肠造口并发症的患者进行半结构式访谈,运用Giorgi现象学研究方法对访谈资料进行分析。结果得出并发症发生后的体验、肠造口并发症发生的原因及最希望获得的帮助3个主题。肠造口并发症患者的主要心理体验有担忧、愤怒和自我效能感下降,肠造口并发症发生的原因有信息缺乏、自理能力低下和医疗条件有限,患者最希望获得信息支持和更多更便捷的医疗资源。结论肠造口患者需要更多的信息和心理支持,医护人员应帮助肠造口患者增强自我效能感和自我管理能力,为其提供延续性护理以提高生命质量。

Objective To study the self--management experience for enterostomy patients after complications in order to provide evidence for taking measures to improve their quality of life. Method 9 enterostomy patients after complications receive semi--structural interview. Analyze the information by Giorgi phenomenological research method. Result 3 themes of experience after complications, causes of complications and help needed are received. The main experiences are concern, an- ger and reducing of self--efficacy for enterostomy patients. Causes of complicatio^s are lack of information, reducing self-- care ability and limited medical condition. Information support and more convenient medical resource are most needed for pa- tients. Conclusion Enterostomy patients need more information and mental support. Medical staff should help patients im- prove their self--efficacy and self--management ability, provide continuing nursing care and improve their quality of life.